Protect, a chapter of the CESSDA Expert Tour on Data Management

Key Info
Description - a brief synopsis, abstract or summary of what the learning resource is about: 

This part of the tour guide focuses on key legal and ethical considerations in creating shareable data.
We begin with clarifying the different legal requirements of Member States, and the impact of the upcoming General Data Protection Regulation (GDPR) on research data management. Subsequently, we will show you how sharing personal data can often be accomplished by using a combination of obtaining informed consent, data anonymisation and regulating data access. Also, the supporting role of ethical review in managing your legal and ethical obligations is highlighted.
After completing your trips around this chapter you should:
Be aware of your legal and ethical obligations towards participants and be informed of the different legal requirements of Member States;
Understand how well-protecting your data, protects you against violating laws and promises made to participants;
Understand the impact of the upcoming General Data Protection Regulation (GDPR; European Union, 2016);
Understand how a combination of informed consent, anonymisation and access controls allows you to create shareable personal data;
Be able to define what elements should be integrated into a consent form;
Be able to apply anonymisation techniques to your data;
Be able to answer the DMP questions which are listed at the end of this chapter and adapt your own DMP.

Authoring Person(s) Name: 
Scott Summers
Authoring Organization(s) Name: 
U.K. Data Services (UKDS)
License - link to legal statement specifying the copyright status of the learning resource: 
Creative Commons Attribution-ShareAlike 4.0 International License - CC BY-SA 4.0
Access Cost: 
No fee
Primary language(s) in which the learning resource was originally published or made available: 
English
More info about
Keywords - short phrases describing what the learning resource is about: 
Anonymisation of data
Confidentiality/Ethics - - Core Trustworthy Data Repositories Requirements
Copyright of data
Data ethics
Informed consent
Social science data
Published / Broadcast: 
Thursday, December 14, 2017
Publisher - organization credited with publishing or broadcasting the learning resource: 
Consortium of European Social Science Data Archives European Infrastructure Consortium (CESSDA ERIC)
Media Type - designation of the form in which the content of the learning resource is represented, e.g., moving image: 
Presentation - representation of the particular way in which an author shows, describes or explains one or more concepts, e.g., a set of Powerpoint slides.
Educational Info
Purpose - primary educational reason for which the learning resource was created: 
Instruction - detailed information about aspects or processes related to data management.
Learning Resource Type - category of the learning resource from the point of view of a professional educator: 
Unit - long-range plan of instruction on a particular concept containing multiple, related lessons.
Target Audience - intended audience for which the learning resource was created: 
Research scientist
Mid-career research scientist
Early-career research scientist
Research faculty
Intended time to complete - approximate amount of time the average student will take to complete the learning resource: 
More than 1 Day (but less than 1 week)